Fast Forward

 So I have definitely not been good about keeping up with this. I had hoped to be a lot better at this than I have been, that is for sure. So many things have happened since my last post. We are still battling kidney stones but are getting that fixed this coming Tuesday so an end is in sight. We now have guardianship of you buddy and that makes me so happy. I can now truly share you with the world and call you mine. Although the adoption can't happen until you have lived with us a fully year, we are one step closer. Your smile warms my heart! 

You continue to amaze me every day. Since this picture was taken, which wasn't very long ago at all, you have been able to come off of your oxygen! You are able to maintain a good oxygen level on room air!!! We only have been using the oxygen at night with your BiPap. This is HUGE buddy! The sky is the limit for you my man. You have been learning and practicing to be able to control your own electric wheelchair. This could be a game changer for you to gain some independence. We are getting to know so many different people in the special needs community and they are helping to make our lives so much better. Today even, we met someone new who needed a chair we had and they had one that we needed! It was mind blowing. We traded and it is so stinking amazing! It fits you so perfectly. It was definitely not the chair that I was advocating for but the therapists were so I fell in line. Truth is, I love it way more than I thought I would. I am so happy for you buddy. You also got your new shower chair and it is so awesome! You are so much safer! Don't even get me started on your new safety bed! My only complaint is that it is a bit tall so I have a harder time getting you in and out of it, as well as positioning you in it but I will get better for sure. 

You have some of the best friends, and so do I! They love you so much and I love how much they try to help you! We had a great experience bowling and playing games in the arcade. You are such a stud! I cannot say enough how proud I am of you and how blessed that I am to get to be your mom! God knew exactly who I was supposed to be and now I can see it too. I was meant to be a nurse so that I would be prepared to be your mom. I love you so much Elijah James and I am in awe of you! You are so resilient and you are constantly beating the odds that were stacked against you. God broke the mold with you, thats for sure. I cannot wait to see how you change over the next year! You start school and baseball in August and things can only go up from there. You will also be changing from home health therapies to in clinic therapies, in hopes that you will continue to grow even more. We are in this together! You are so strong! I know you can do it! Keep up the hard work and show people what God truly can do! 







Comments

Post a Comment

Popular posts from this blog

Beginning The Memories

 It was suggested to me that I should documenting our time together. I imagined this looking a lot different. I started keeping notes on my feelings about you before I got you and then once you got here, time got away from me and I got so wrapped up in you that I didn't write any of it down. We have had so much fun together so far. You have absolutely changed my life forever and I am so grateful to call you mine. I can't believe that you have been in our home for 3.5 months already! Time has gone by so fast. Your smile is infectious. In fact, the other night you woke me up twice with your laughter and then you spent the following day smiling and cooing, so full of joy. I couldn't help but wonder what was going on in your mind. I love every minute that I get with you. We dance together and you grin from ear to ear. You love all things Spiderman! You are making so much progress in therapies. I love when you make such large strides with your "push-ups" and when you s
Read more

Its in the Past, or is it?

 Today brought up a lot of memories that I don't enjoy reliving. You see kiddo, you are our second foster placement. Our first placement put us through a lot and I have a lot of wounds because of it. While my wounds can't be seen on the outside, they are very real on the inside. We were so excited to be parents for the first time and did not know how hard the next 6 months were going to be. We were licensed through a Christian agency that had a good reputation and they claimed to provide a large amount of support. With our particular placement, we were instructed to stay in close contact with two specific people within the agency because the case was so high profile. Along the way, we begged for help with the behaviors that were occurring in our home but kept receiving the same advice, "keep doing what you're doing". We wanted more help. We wanted one of the two kiddos to go to an inpatient center to help understand the uncontrollable behaviors but the agency foug
Read more

Superheroes... In Training

 Last night I had a very hard time falling asleep. I tossed and turned and all I could think about was more that I wanted to say. I jotted them down in a note on my phone and finally was able to go to sleep. As I type this, you are in bed with your shaky vest on and watching TV. We got a bit of a later start because I fell back asleep. I woke up at 5 to turn you and you were wide awake. I tried to stay awake with you but it just didn't last.  Sometimes I find myself getting very frustrated with my husband. You see kiddo, we see the world very differently, especially when it comes to taking care of you. Most of the time, I love doing it all on my own because it makes me feel important and strong! You are the super hero and I am your sidekick. If you and I were Batman and Robin, my hubby would be our Alfred. He likes to observe and help from the sidelines and we are the ones in the action. While Alfred is a vital person to the Batman and Robin story, I wish we were more like the Just
Read more